Sandra Soo-Jin Lee, PhD
- Professor of Medical Humanities and Ethics
On the web
Overview
Sandra Soo-Jin Lee, PhD is Chief of the Division of Ethics and Professor of Medical Humanities & Ethics with tenure at Columbia University. Trained as a medical anthropologist, Dr. Lee has extensive experience leading multi-disciplinary, multi-institutional bioethics research funded by the National Institutes of Health (NIH), including Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (1R01 HG12841-01), Ethics of Inclusion: Diversity in Precision Medicine Research (1R01HG010330), and Beyond Consent: Patient Preferences for Governance of Use of Clinical Samples and Data (1R01LM012180). Dr. Lee recently served on the U.S. National Academies of Science, Engineering and Medicine’s Committee on the Use of Race, Ethnicity, and Ancestry as Population Descriptors in Genomics Research that produced guidelines for NIH.
Dr. Lee is Co-PI of the Center for ELSI Resources and Analysis (CERA)/ELSIhub funded by the NIH/NHGRI and was Co-Director of the 2020, 2022 and 2024 ELSI Congress. Dr. Lee is a member of the US Health and Human Services Secretary’s Advisory Committee on Human Research Protections (SACHRP) and serves on the Scientific Advisory Boards of the Kaiser Permanente National Research Biobank, NIH funded Human Pangenome Research Consortium, and the Genome Canada funded Canada First Research Excellence Fund Program DNA to RNA: An Inclusive Canadian Approach to Genomic-based RNA Therapeutics (D2R).
Dr. Lee has served as President of the Association of Bioethics Program Directors (ABPD) and as co-chair of the ABPD Presidential Task Force on Racial Equity, Diversity and Inclusion. She serves on the editorial boards of the American Journal of Bioethics and Narrative Inquiry in Bioethics and on the Editorial Advisory Committee for the American College of Medical Genetics Journals Genetics in Medicine and Genetics in Medicine Open. She is a Hastings Center Fellow and has been a Rockefeller Foundation Fellow in the Humanities, a Wenner-Gren Foundation Fellow, a University of Edinburgh Bright Ideas Fellow, and a Fellow at the School for Advanced Research.
Dr. Lee has mentored over 30 trainees and early career and tenure track faculty. At Columbia, Dr. Lee co-leads the NIH funded Justice Dialogues, serves as Chair of the Committee on Appointments and Promotions and is Director of the Team Science Program at the Irving Institute for Clinical and Translational Research. Dr. Lee received her doctorate from the University of California, Berkeley and San Francisco (UCB/UCSF) joint program in Medical Anthropology and her undergraduate degree in Human Biology from Stanford University.
Academic Appointments
- Professor of Medical Humanities and Ethics
Administrative Titles
- Chief, Division of Ethics
- Director, Team Science Resource (TEAMS) Columbia University Irving Institute for Clinical and Translational Research
- Associate Director, Regulatory Knowledge and Support and Ethics Resource (RSKER) Columbia University Irving Institute for Clinical and Translational Research
Gender
- Female
Credentials & Experience
Education & Training
- BA, Human Biology, Stanford University
- PhD, Medical Anthropology, University of California, San Francisco / University of California, Berkeley
- Fellowship: Stanford University School of Medicine
Committees, Societies, Councils
- President, Association of Bioethics Program Directors
- Hastings Center Fellow, Association of Bioethics Program Directors
- Economic and Social Research Council Bright Fellow, University of Edinburgh
- Wenner-Gren Foundation Faculty Fellow,
- Rockefeller Foundation Fellow in Medical Humanities
- Resident Fellow, School for Advanced Research.
- Member, Committee on Use of Race, Ethnicity, and Ancestry as Population Descriptors in Genomics Research, National Academies of Science, Engineering and Medicine
- Chairperson, Institutional Review Board, Cancer Prevention Institute of California
- NIH/NHGRI Coriell Consultation and Oversight Committee, International Haplotype Map
- Member, Scientific and Bioethics Advisory Board, Kaiser Permanente National Research Biobank
- Member, Scientific and Bioethics Advisory Board, NIH Human Pangenome Research Consortium
Editorial Boards
- American Journal of Bioethics and Narrative Inquiry in Bioethics
- Editorial Advisory Committee, American College of Medical Genetics Journals
Research
Research Interests
- Artificial Intelligence (AI)
- Bioethics
- Genetics
- Genomics
- Health Equity and Disparities
- Medical Anthropology
- Precision Medicine
- Science, Technology, and Society
- Team Science
Grants
- NIH/NHGRI R01 HG010330-01
Ethics of Diversity: Inclusion in Precision Medicine Research
(PIs: Lee, S S-J -Stanford and Shim, J- UCSF) - NIH/NHGRI U13 HG010844-01
ELSI Biennial Congress
(PI: Lee, S S-J - Columbia and Cho, M - Stanford) - NIH/NHGRI U24 HG010733-01
Center for ELSI Resources and Analysis
(PIs: Lee, S S-J- Columbia and Cho, M-Stanford - NIH/NLM R01LM012180-01
Beyond Consent: Patient Preferences for Governance of Use of Clinical Samples and Data
(PI: Lee, S S-J) - NIH/NHGRI R03HG010178-01
The Ethics of Inclusion: Conceptualizing Diversity in Genomics Research
(PI: Lee, S S-J) - NIH/NHGRI R01HG005086-01
Social Networking and Personal Genomics: Emerging Issues in Health Research
(PI: Lee, S S-J) - NIH/NCATS U01 RR025744
An Ethnography of Team Science: Case Study of Biodesign
(PI: Lee S S-J) - NIH/NHGRI K01 HL72465
Distributive Justice and Human Genetic Variation Research.
(PI: Lee, S S-J)
Selected Publications
- Lee, S.S., Stephanie M. Fullerton, Caitlin E. McMahon, Mike Bentz, Aliya Saperstein, Melanie Jeske, Emily Vasquez, Nicole Foti, Larissa Saco, and Janet K. Shim. (2022) Targeting Representation: Interpreting Calls for Diversity in Precision Medicine Research. Yale Journal of Biology and Medicine. 95(3), pp.317-326.
- Lee, Sandra S.S, Paul S. Appelbaum, and Wendy K. Chung. (2022) Health Disparities in Genomic Medicine: Challenges and Potential Solutions. Cell. Jun 9;185(12):2007-10
- Jeske, Melanie, Emily Vasquez, Stephanie M. Fullerton, Aliya Saperstein, Michael Bentz, Nicole Foti, Janet Shim and SS Lee (2022) Beyond inclusion: enacting team equity in precision medicine research. PLoSOne 17(2). E0263750.
- Lee, Sandra Soo-Jin. (2020) The Gift: Reciprocity and Responsibility in Precision Medicine. American Journal of Bioethics.
- Ethics of inclusion: Cultivate trust in precision medicine. Science (New York, N.Y.) Lee, S. S., Fullerton, S. M., Saperstein, A., Shim, J. K. 2019; 364 (6444): 941-42
- "I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research. Genetics in medicine : official journal of the American College of Medical Genetics Lee, S. S., Cho, M. K., Kraft, S. A., Varsava, N., Gillespie, K., Ormond, K. E., Wilfond, B. S., Magnus, D. 2018
- Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research AMERICAN JOURNAL OF BIOETHICS Kraft, S. A., Cho, M. K., Gillespie, K., Halley, M., Varsava, N., Ormond, K. E., Luft, H. S., Wilfond, B. S., Lee, S. S. 2018; 18 (4): 3-20
- Excavating difference: race in genomic medicine HANDBOOK OF GENOMICS, HEALTH AND SOCIETY, 2ND EDITION Lee, S.S, Gibbon, S., Prainsack, B., Hilgartner, S., Lamoreaux, J.2018: 221-27
- Anticipating uncertainty and irrevocable decisions: provider perspectives on implementing whole-genome sequencing in critically ill children with heart disease. Genetics in medicine : official journal of the American College of Medical Genetics Char, D. S., Lee, S. S., Magnus, D., Cho, M. 2018
- Trustworthiness in Untrustworthy Times: Response to Open Peer Commentaries on Beyond Consent AMERICAN JOURNAL OF BIOETHICS Kraft, S. A., Cho, M. K., Gillespie, K., Varsava, N., Ormond, K. E., Wilfond, B. S., Lee, S. S. 2018; 18 (5): W6-W8More
- Institutional culture is the key to team science NATURE BIOTECHNOLOGY Lee, S.S., Jabloner, A.2017; 35 (12): 1212-14
- A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent CLINICAL TRIALS Kraft, S. A., Constantine, M., Magnus, D., Porter, K. M., Lee, S. S., Green, M., Kass, N. E., Wilfond, B. S., Cho, M. K.2017; 14 (1): 94-102More
- Studying "Friends": The Ethics of Using Social Media as Research Platforms AMERICAN JOURNAL OF BIOETHICS Lee, S.S. 2017; 17 (3): 1-2
For a complete list of publications, please visit PubMed.gov